We went to the see the neurologist for the 6 month follow up to the “wait and see” plan of treatment yesterday. It was a typical outing: 2 hours to get out of bed and get dressed and downstairs.(no shower, that only happens 2 x a week) Another 1/2 hour to take medications and get … More No One is safe…….
I’m alive and somewhat well; since a lot of folks have been asking: “did I miss your last post?” No, I’ve just been “busy”!! When my life changed approx. 5 years ago, I immediately sought out the counsel of those who had gone before me. The overwhelming advice was to make sure and take care of myself, … More “Guilty as Charged”
It’s been 2 months since my last post. It seemed like my life was just going along, status quo, without any “real” incidents; (how quickly one can adapt to the “Not so Normal”). The ongoing issue is just your run of the mill paranoia stuff. I now put the lid of the toilet seat down … More As the Alz World Turns…..
My LO was actually thinking about her upcoming appt with the “lady Dr.” (she can’t remember her name), and she must have remembered something about the last visit when she was told that she had early/young onset Alzheimer’s. Specifically, the “NOT normal” MRI. She told me that, that damaged part of her brain is where … More Follow up with the Neurologist….
Having anxiety about the future, i.e. not being able to control everything because “you know….., I know what’s best”; is something I struggle with and pray constantly for help with that. My mantra: is “just do the next indicated step and leave the results to God.” Applying for Social Security Disability for my LO was … More Just do the next indicated step….
One week later, after being told she has Early Onset Alzheimer’s, my LO is convinced the Neurologist is “playing the game” to help her get SS disability. She now “knows” the Dr. was speaking to her in “code” when she told her she has deficits, because she has to have deficits to qualify for disability; … More Wishful thinking…..
The good news is that my LO has been formally diagnosed and was told by the neurologist that she has it; the bad news is: it’s Early Onset Alzheimer’s Disease, (EOAD). The only reason we needed a formal diagnosis was so we can apply for Social Security Disability. I’ve “known” for over 4 years now … More Good News…. Bad News
Let me start off by saying I will sharing about a couple of topics that make some folks uncomfortable; I’m sorry about that, they make me uncomfortable too! The latest rant started last night around 2:00 am. I had been gone all day (work, then Prayer Circle for some good friends), got home around 10:00pm … More The latest rant……
Last week I almost could have been lulled into believing maybe I’ve over-reacted and my LO doesn’t have Young/Early Onset Alzheimer’s Disease. Maybe I was reading too much into everything, (occupational hazard). We have season tickets for the Pantages Theater and we went to see 42nd St last week. It was like the “old” days; … More Time marches on…..
This the last leg of a week long trek thru AZ. First leg was the Grand Canyon, she (my LO, with early onset Alzheimer’s disease), had never been; (trying to create memories); The second leg was a visit with good friends at The Lodge in Prescott, (gracious hosts-thanks); and now the final leg: We are staying … More Sanctuary