When I began telling friends about my suspicions (and now, belief; still no official diagnosis) about my LO’s Early Onset Alzheimer’s Disease (EOAD) 2 years ago, it was such a relief. For 2 years before that I kept this awful secret all bottled up inside! ( I know that’s why I now have a lot more gray hair!!) It was all consuming and I was going crazy! So, needless to say, it was all about just getting it out. I don’t think I even paid attention to anyone’s response. But now that I have been gradually telling everyone, I’m particularly amazed at the reactions to hearing such news.
Most folks, don’t know what to say, (just like when someone dies unexpectedly), but they really want to say something, (because it’s always a shocker). I’ve heard the gamut: from “what are you going to do”? (I often wonder, do they really think “leaving” is an option?) to just “I’m sorry”. I will tell you, from my experience so far, the most comforting is the simplest: “I’m sorry”; (with an added hug, it’s like dessert with whipped cream on top!).
Please don’t get me wrong, I appreciate all comments and expressions of concern, because I know they come from a place of loving and caring. ( I have said those “well meaning” words myself at some time). I just wanted to share with everyone that sometimes the simplest words, or no words at all, (a long hug) are the best.